Modified Life–Life Lessons the Hard Way

Today, I was reading an update from my friend Terra whose little girl is fighting for her life.          If you haven’t liked her page, you can find it here:  Hope For Kendall.  If this post does nothing else, I hope that it urges you to pray fervently for sweet Kendall and her beautiful family.  However, Terra’s always honest and heartfelt words about struggling to tell Kendall’s sisters about how sick Kendall is and that their planned family vacation won’t include everyone because she has to stay with Kendall in the hospital cut me to the core.  She’s fighting so hard with her sick baby and she’s afraid that she’s failing her other girls because she has to be with her beautiful sick princess.  Maybe you’ve never had to cancel or change a vacation.  Maybe your child’s needs haven’t required you to spend weeks on end in the hospital, but don’t you sometimes worry about the cost of modified life for your other children (or others you may want to have)?  I know that I have. Continue reading

From One Child to Another

I’ve heard my friends talk a lot about how different it is to go from having only one child to having two or more.  While that’s very true, it’s even more true when your first child has special needs.  To add another child into the mix can be terrifying, exhilarating, and overwhelming.  It also adds more love, laughter, and tears.  You’ve probably heard me say that it took a lot of soul searching, prayers, and conversations to decide to have our daughter.  Our son was born with cerebral palsy, and while he is able to sit on his own, crawl, and now walk, he was not able to for a long time.  He was not walking at 5 years old when we had our daughter.  That’s right; I had a five-year-old son who weighed 45 pounds and I was pregnant and then had a baby in a carrier for a year.  It was hard work to help him so much, when my own body was changing so drastically, and then to have a baby in a carrier on one arm and my big boy on the other should’ve helped Mama to lose the pregnancy weight–but it didn’t.  I digress. Continue reading

The Hands Across My Heart

Today’s post is about the hands across my heart.

There we lay; three lumps in my bed.  My youngest girl on my left, my youngest boy on my right; they stretched their hands across me tickling each other to stay awake.  I breathed deeply and told myself not to roll my eyes.  It was one of those moments when you don’t bother to say anything at all because if you dare to open your mouth a deafening scream might just escape.   Continue reading

The Best Wish I Ever Made

My beautiful Laura-Elizabeth

This is my oldest child, my only biological child and she celebrated her 11th birthday yesterday.  I only mention her biology because it is such a big part of this Wishful Wednesday story, otherwise, it is unimportant.  In case anyone out there is adopted or is considering adoption, let me promise you, there is absolutely 0% difference in my bonding or love for any of my children–none.  However, her biology is a big piece of the picture of how my family became what it is.  That’s the story I want to share today. Continue reading

Life Lessons For My Daughter

A few days ago, I began to think about my daughter starting Kindergarten soon. Tomorrow, in fact.  I’m concerned that because we’ve kept such a tight reign on her social life (meaning who she’s allowed to hang out with) that she will come home with either an attitude we can’t stand, or saying things we don’t like.  So, I came up with this little list of lessons that I’d like her to remember when she’s out and about and into her adulthood.  I also think that these would apply to anyone, adult and child alike. Continue reading

Sing a Song of Siblings

When Brandy and I first started dreaming up this site, one of my first thoughts was that I really wanted to have a category devoted to all things sibling.  At my house, there are siblings with and without special needs, adoptive and biological siblings, siblings who remember foster siblings who no longer live here-in other words, blog fodder for a lifetime.  For today though, I want to talk a little about guilt; the guilt we feel for siblings who are developing neurotypically.   Continue reading